Looking back

I was having a clear out near the start of lockdown and came across something I wrote many years ago after visiting my sister. I wrote it as if I was speaking to my sister, but I never shared it with her.

I feel like sharing it now, not just as a memory of someone who has now gone, but also as a reminder to myself of an important lesson. At the time I wrote the first piece, my sister was in hospital fighting mental illness. She made a partial recovery but in 2018, her health took a turn for the worse and after another spell in and out of hospital, she lost her battle. The second piece, I wrote recently. Both are addressed to my sister.

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I had travelled a long way to see you. When I stepped off the bus at the hospital, I felt a bit nervous, but I was glad that for one short afternoon we wouldn’t be separated by land and sea.

You were much thinner than the last time I saw you. You hadn’t been eating. For a moment, I saw fear in your eyes and then you hid it behind a laugh.

We went to the hospital café. I was hungry, but you didn’t want to eat. We talked about the outside world, about what was going on in my life. We went over shared memories. You began to relax a little as we tried to forget that you were locked up in hospital waiting for the day when you’d be well enough to return to your husband and children. From this viewpoint, your present life looked so empty compared to where you were before you get ill, but how do I know what inner journey you are making?

“How’s the food?” I asked.

“Not good.”

“Is there anything you can do about that?”

“Not much.”

I remember the last time I saw you. You were on a rare home visit. Our children were with us, playing happily in the sun, but I wasn’t peaceful. I was thinking of something you had done, part of your illness.

Your son fell and you put your arm around him to comfort him. He stopped crying. It was a moment for silence or for a word of praise, but I wasn’t wise. The words tumbled out, “Why did you do that last night … You need to change … If you keep on like this, you’ll just get sicker.”

You looked at me with astonishment and then you got angry. It wasn’t my business. Why was I going on like this, talking about something which was already history when sunlight was falling on us and you and your son were happy?

In the hospital café, I began to understand that words like ‘Should’ and ‘Why’ are not helpful, but what would I put in their place?

The answer came to me as I walked back with you to the ward. Love. That’s the only word that is important. I told you that you were my closest friend. I reminded you of the times when you helped me, and of how important and precious you are.

“You are the light in your children’s lives,” I said. “The sun wouldn’t shine for them without you.”

I thought then that I saw a glint of hope in your eyes. You wanted to believe this.

A nurse came in to say that dinner is ready.

“I think I might manage to eat something,” you told the nurse.

I put my arms around you and then I left. On my way to the bus stop, I turned around one last time. You were still standing at the hospital entrance, and I saw a brave woman, a heroine, someone who was living with mental illness.

 

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I wrote that years ago. You got better, well enough to leave hospital and live with your family again, to paint, make crafts, go on walks, plant flowers, kiss your kids as they lay down to sleep, give them breakfast in the morning. You were never completely well, but you fought so hard. You did courses, volunteered, even got a job, but the work was too rushed and busy, people in power cutting corners so that they could save money.

If that job had worked out, maybe you would still be here. I could say that about so many little things. If they had gone the other way, maybe you would have had a fighting chance. You kept on going, fought your illness, but you got sick again. By then, the hospital ward where you had stayed before, which had helped you recover, had closed due to government cuts. You were put in a hospital where junkies were dealing on the ward, and where they didn’t have the resources to help people get better. They sent you home, because after changing your medication, there was nothing more they could do for you. The next time you hit a crisis point, you were back in hospital being prescribed a different cocktail of chemicals.

The last time they discharged you, you were still very unwell. You asked for help, seven times, but the message didn’t get through.

You didn’t make it. Not in this life, and I can’t read what I wrote all these years ago without tears. The day you left your family, the sun stopped shining for them.

I could ask why you ended your life, but I won’t get an answer. Maybe you thought we would be better off without you. ‘Why’ is too harsh and hard. I’ll go back to what I learnt years ago, and hold onto the hope that love will get us through this. There’s a saying in Gaelic that love and music will endure. You loved us, and we loved you. The love of you and the loss of you, it’s two sides of the same coin.

And I’ll hold onto that image of you as a brave woman, someone who fought what Alastair Campbell, writing about his brother, calls the shittiest of shitty illnesses. Just because you fell in battle doesn’t reduce your bravery.

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And I’ll end here with a quote I found on the internet shared by others who have lost loved ones to suicide. I think it is from ‘The Healing of Sorrow’ by Norman Vincent Peale.

Our friend died on his own battlefield. He was killed in action fighting a civil war. He fought against adversaries that were as real to him as his casket is real to us. They were powerful adversaries. They took toll of his energies and endurance. They exhausted the last vestiges of his courage and strength. At last these adversaries overwhelmed him. And it appeared that he lost the war. But did he? I see a host of victories that he has won!

For one thing — he has won our admiration — because even if he lost the war, we give him credit for his bravery on the battlefield. And we give him credit for the courage and pride and hope that he used as his weapons as long as he could. We shall remember not his death, but his daily victories gained through his kindnesses and thoughtfulness, through his love for family and friends, for animals and books and music, for all things beautiful, lovely and honorable. We shall remember the many days that he was victorious over overwhelming odds. We shall remember not the years we thought he had left, but the intensity with which he lived the years he had!

Only God knows what this child of His suffered in the silent skirmishes that took place in his soul. But our consolation is that God does know and understands!

 

 

A grave matter?

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In the first few hours after the shock of my sister’s suicide, I was travelling to be with my parents, unable to stop weeping. I googled ‘Catholic Church suicide’ and came across articles which quoted the following passage from the Catechism:

2281 Suicide contradicts the natural inclination of the human being to preserve and perpetuate his life. It is gravely contrary to the just love of self. It likewise offends love of neighbor because it unjustly breaks the ties of solidarity with family, nation, and other human societies to which we continue to have obligations. Suicide is contrary to love for the living God.

The articles were along the lines of: Suicide is a grave matter, equivalent to self-murder. It is a rejection of God’s gift of life, but taking into account other things, like mental illness, it’s possible that God might have mercy on the person who commits it.

A thread of hope, but not a shred of comfort for someone who has just experienced the incomprehensible and inexplicable pain of losing a loved one to suicide. No doubt these articles were aimed at people theoretically interested in the question, rather than families recently bereaved by suicide.

The poverty of illness

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My sister was poor in every sense of the word, suffering from a long, mental illness which she hadn’t chosen or deserved. Because of her illness, she was unable to work, and she and her family were dependent on benefits.

She was poor in spirit, pride crushed out of her by years of struggling with psychosis, an illness which bears a huge stigma. Although she fought to be well enough to take part in family life, during bad phases she was dependent on the help of others, both family and health professionals.

I am grateful for the many people who helped my sister, most of whom I will never know by name. Over the last six months of her life, the support she received was inadequate to turn the tide of her illness. During the last three weeks, she asked for help many times and didn’t get it.

In the end, my sister was so poor that she did not find a way to stay in this world. She didn’t choose to reject the gift of life. She clung on, without the help she needed, until the chaos in her mind overwhelmed her.

Jesus hung out with corrupt tax collectors and prostitutes. He had the courage to touch lepers and heal those whose minds were broken by ‘evil spirits’. I can’t believe that he would prevaricate over my sister, weighing up the graveness of her sin against the severity of her illness, and maybe, just maybe, showing a glint of mercy.

I can only imagine Jesus, seeing someone so sick, broken and poor that she couldn’t find a way to go on living, reaching out his hand to give her the healing and compassion she didn’t find in this life.

I’ve had to do a lot of work to get to this stage. After digging deeper into Google, I found some resources:

A prayer for those who have taken their own life

The blog of a mother who lost her daughter to suicide

A book by Ronald Rohlheiser on suicide which helped me to believe that God shows love and compassion to people like my sister who are so broken and sick that they cannot go on living

Is suicide a grave matter?

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Have I got to a conviction of God’s mercy by bypassing the church’s teaching that suicide is a grave sin?

I know that suicide is a grave matter. After experiencing the pain and chaos of my sister’s suicide, the rifts as people look for someone or something to blame, and after seeing the shock and sorrow spread out to touch friends and even strangers who never knew my sister, I can think no other way.

But my sister was a loving, caring person, and didn’t intend to cause us pain.

She was started on a new medication, and discharged from hospital soon afterwards. Surprised by her sudden discharge, I took it as a sign that she was making rapid progress. I now know that she was discharged, not because she was better, but probably because the bed was needed for another patient. Unknown to me, my sister began making suicidal calls for help almost as soon as she was discharged. This went on until the day she took her life. There were plenty of chances for her to be readmitted to hospital, but she wasn’t.

My sister’s mind and body were worn down and almost broken by illness, treatments which didn’t work and a powerful anti-psychotic medication which was known to carry the risk of suicidal urges. If she wasn’t fully responsible, who was?

Who’s responsible?

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I started with myself, of course. It’s the typical response of suicide survivors. Why didn’t I phone more often? Why did I assume that she was better just because she was discharged? Why didn’t I know something was badly wrong? Why did I give her space instead of phoning when she didn’t respond to my messages?

My husband said, ‘Don’t do what-ifs’. The suicide bereavement helpline said, ‘It’s not your fault’.

The blame is like a hot potato. If I can’t bear to hold it, where do I fling it? Who caused this illness? The urge to blame someone can be almost overwhelming. And then I pray and see the suffering of other family members and realise, it wasn’t them. This is something which happened, and we don’t know why. If she had had cancer, we wouldn’t ask who caused it.

Who do I blame next? The National Health Service.  The second thing the suicide bereavement helpline said was, ‘It’s not the NHS’s fault either.’ That took a while to sink in. It really hurt. I wanted a scapegoat, an institution I could paint as harsh and uncaring. But these people who gave their time and energy and abilities to try to help my sister.  For a while, at least, that help was effective. When I heard that one of the mental health nurses who had cared for my sister was off work with stress, I wanted to tell her, it’s not your fault, and thank you for doing what you could.

I can’t attach blame to someone who was ill and crushed and broken, can neither hold it myself, or fling it at other people or even the organisation responsible for her care. I’ve tried throwing it at God, but I’m not getting a lot back from God on this. My sister’s death is an unhealed blister on my soul. Why didn’t you save her? Did we not pray enough, love her enough, love You enough?

Not everyone is healed in this life. I didn’t ask you to pray her back to health, but to pray her into heaven. These are the only answers I seem to catch.

An unhealed world

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In a recent Richard Rohr meditation, I found the concept I was missing:

Hope cannot be had by the individual if everything is corporately hopeless.

It is hard to heal individuals when the whole thing is seen as unhealable.

My sister’s illness and tragic death was a symptom of an unhealed world, a world where we burn greenhouse gases without caring about the climate, where we clear rainforest without regard for animals and plants, where we know the cost of everything and yet don’t value what really matters. We live in a society which has recently cut support to those suffering from mental and physical disabilities.

My sister lived in a world which didn’t put much value on those who were too sick to work, a society that didn’t know her smile, a little uncertain at times, but still there, that didn’t recognise the struggle she made to be with her kids, that didn’t see her talent for listening to and helping those who were also on the margins.

Decisions were made: to cut funding to mental health, to close a ward where she had made a slow journey to healing after a previous crisis, to send everyone to one overloaded hospital which was simply no longer able to cope.

This is the world I lived in, cocooned from the worst of the pain and chaos, until it breached my defences and I saw how fragile things are.

This is the world I continue to live in, without my sister, and yet for her in a way.

And my prayer changes from why did this happen to, what can I do?